I dont think people see disabled lives as worthless to the point they think they're better off dead. Those masks were horrendous, they triggered off my trigeminal neuralgia, but that didn't seem to matter.
People don't think about disabled people, it's not intentional. There's a lot more that could be done but that's life. Im not going to…
I dont think people see disabled lives as worthless to the point they think they're better off dead. Those masks were horrendous, they triggered off my trigeminal neuralgia, but that didn't seem to matter.
People don't think about disabled people, it's not intentional. There's a lot more that could be done but that's life. Im not going to live in fear of what ifs, because that's even more life limiting.
I’m sorry the masks triggered your TM - I know that can be very painful.
I think for the majority of people however, masks don’t present any issue. They’re not uncomfortable or painful. People just didn’t want to wear them. So they stopped. Many regret their decision after ending up with life altering Long Covid.
I also think it’s important we distinguish between “living in fear” and being prepared. My publication (and this article) are designed to raise awareness about areas that need improvement so that people with disabilities can be safer.
If we ignore the warning signs, nothing will change. It can be empowering to put safety plans in place and rally with your community to protect the vulnerable. For me it feels like the opposite of living in fear.
I recently heard a therapist say that fear is a rational response to an actual danger or threat, while anxiety is an irrational or disproportionate response to a non-imminent or likely danger or threat. That shifted things for me a bit. I don’t want fear to rule my life, certainly, but we already know what this virus can do to our bodies. So it’s an entirely rational response to fear it.
Yes exactly. It’s a rational response and there are steps we can take to be responsible about our level of risk without being crippled by fear.
I think that’s what people need to understand. You can have humility in the face of a novel virus without letting it “rule your life”. It’s all about adapting.
I dont think people see disabled lives as worthless to the point they think they're better off dead. Those masks were horrendous, they triggered off my trigeminal neuralgia, but that didn't seem to matter.
People don't think about disabled people, it's not intentional. There's a lot more that could be done but that's life. Im not going to live in fear of what ifs, because that's even more life limiting.
I’m sorry the masks triggered your TM - I know that can be very painful.
I think for the majority of people however, masks don’t present any issue. They’re not uncomfortable or painful. People just didn’t want to wear them. So they stopped. Many regret their decision after ending up with life altering Long Covid.
I also think it’s important we distinguish between “living in fear” and being prepared. My publication (and this article) are designed to raise awareness about areas that need improvement so that people with disabilities can be safer.
If we ignore the warning signs, nothing will change. It can be empowering to put safety plans in place and rally with your community to protect the vulnerable. For me it feels like the opposite of living in fear.
I recently heard a therapist say that fear is a rational response to an actual danger or threat, while anxiety is an irrational or disproportionate response to a non-imminent or likely danger or threat. That shifted things for me a bit. I don’t want fear to rule my life, certainly, but we already know what this virus can do to our bodies. So it’s an entirely rational response to fear it.
Yes exactly. It’s a rational response and there are steps we can take to be responsible about our level of risk without being crippled by fear.
I think that’s what people need to understand. You can have humility in the face of a novel virus without letting it “rule your life”. It’s all about adapting.