Gaslighting ourselves is so dangerous. I didn’t even realize I was doing it to myself until 2020 came around and we were forced to not have to run around and do errands and doctors appointments in person. I actually thought I got my MECFS into remission with LDN and some forced rest. Then I started doing more and I realized I wasn’t actu…
Gaslighting ourselves is so dangerous. I didn’t even realize I was doing it to myself until 2020 came around and we were forced to not have to run around and do errands and doctors appointments in person. I actually thought I got my MECFS into remission with LDN and some forced rest. Then I started doing more and I realized I wasn’t actually in remission I was just doing the proper level of activity for my pacing.
And I’m upset that doctors are pushing back against telemedicine lately, Medicare approved it until the end of 2025 so I feel like I should be able to have telemedicine until the end of 2025. So I push back too.
it’s so common with mental health patients I’m surprised I didn’t recognize it sooner when I did it to myself.
You know, people will take meds because they need them and the meds work so well they feel fine. And after feeling fine for a long time they think “hey I don’t really need these meds I’m fine.” And if they stop taking the meds they remember why they needed them, but it’s problematic and disruptive. Just like when I forget that I have to be better at pacing & that I feel good BECAUSE I have been careful. Now is not the time to stop being careful. ❤️
These are such important insights Maggie! Too often we are gaslighting ourselves so strongly that we may not even realize how sick we've become That's happened to me as well - and when something forces me to slow down I suddenly realize 'oh I wasn't doing as well as I thought'
Telemedicine was/is a huge part of that. Appointments took SO much out of me and I couldn't believe how spoon saving virtual appointments have been. We're still allowing them in Canada - but doctors are paid less for them so some don't want to do it. I push back too.
Gaslighting ourselves is so dangerous. I didn’t even realize I was doing it to myself until 2020 came around and we were forced to not have to run around and do errands and doctors appointments in person. I actually thought I got my MECFS into remission with LDN and some forced rest. Then I started doing more and I realized I wasn’t actually in remission I was just doing the proper level of activity for my pacing.
And I’m upset that doctors are pushing back against telemedicine lately, Medicare approved it until the end of 2025 so I feel like I should be able to have telemedicine until the end of 2025. So I push back too.
Wow, that is really insightful! Thanks for sharing that because I’m starting to feel like there’s a pattern and many of us maybe experiencing it.
I am sorry to hear about the telemedicine. You’d think it was to their advantage, as well as your own, to continue with it.
it’s so common with mental health patients I’m surprised I didn’t recognize it sooner when I did it to myself.
You know, people will take meds because they need them and the meds work so well they feel fine. And after feeling fine for a long time they think “hey I don’t really need these meds I’m fine.” And if they stop taking the meds they remember why they needed them, but it’s problematic and disruptive. Just like when I forget that I have to be better at pacing & that I feel good BECAUSE I have been careful. Now is not the time to stop being careful. ❤️
These are such important insights Maggie! Too often we are gaslighting ourselves so strongly that we may not even realize how sick we've become That's happened to me as well - and when something forces me to slow down I suddenly realize 'oh I wasn't doing as well as I thought'
Telemedicine was/is a huge part of that. Appointments took SO much out of me and I couldn't believe how spoon saving virtual appointments have been. We're still allowing them in Canada - but doctors are paid less for them so some don't want to do it. I push back too.