Thanks so much for spending precious spoons writing this helpful advice. I wish I’d had it when I was first developing my severe dysautonomia!
I think that your advice about being in public would have helped me the most. It took me forever to figure out how to cope with standing in lines/queues, traveling (especially internationally), and…
Thanks so much for spending precious spoons writing this helpful advice. I wish I’d had it when I was first developing my severe dysautonomia!
I think that your advice about being in public would have helped me the most. It took me forever to figure out how to cope with standing in lines/queues, traveling (especially internationally), and dealing with syncope in public (passing out). I was just plain stubborn about resisting using all assistive devices- so I opposed shower chair and cane until I had no choice.
Like you, my MCAS limited my salty food options, and high potassium levels has complicated premade hydration choices. And I loathe the taste of salt, but I have learnt that my body rarely cares about my preferences.
Thank you again so much for sharing your experience and offering encouragement for ways to live life in ways that maximize its quality. And I send you 💜🥄💜🥄💜🥄
Thank you so much for the extra spoons - you have no idea how much I needed them! This one took a lot out of me - I underestimated the effect of reliving so many awful flares and bad injuries etc.
“My body rarely cares about my preferences” is so perfect for us - mine doesn’t care either!! I joke that I’m one step from being “cured “ (like meat - not like all better) lol
Thanks so much for spending precious spoons writing this helpful advice. I wish I’d had it when I was first developing my severe dysautonomia!
I think that your advice about being in public would have helped me the most. It took me forever to figure out how to cope with standing in lines/queues, traveling (especially internationally), and dealing with syncope in public (passing out). I was just plain stubborn about resisting using all assistive devices- so I opposed shower chair and cane until I had no choice.
Like you, my MCAS limited my salty food options, and high potassium levels has complicated premade hydration choices. And I loathe the taste of salt, but I have learnt that my body rarely cares about my preferences.
Thank you again so much for sharing your experience and offering encouragement for ways to live life in ways that maximize its quality. And I send you 💜🥄💜🥄💜🥄
Thank you so much for the extra spoons - you have no idea how much I needed them! This one took a lot out of me - I underestimated the effect of reliving so many awful flares and bad injuries etc.
“My body rarely cares about my preferences” is so perfect for us - mine doesn’t care either!! I joke that I’m one step from being “cured “ (like meat - not like all better) lol