Second time I've heard this disease mentioned in a week. Ehlers-Danlos Syndrome. Mom had an aide we thought was perfect, but she has that plus something else and it was too much physical labor for her. I'd never heard of it before last week.
I loved libraries for their quietness. When your life is filled with chaos, sometimes silence is e…
Second time I've heard this disease mentioned in a week. Ehlers-Danlos Syndrome. Mom had an aide we thought was perfect, but she has that plus something else and it was too much physical labor for her. I'd never heard of it before last week.
I loved libraries for their quietness. When your life is filled with chaos, sometimes silence is enough. These days, that's not as true with arguments over who will use the computer next and so on. Or maybe it's more about the neighborhoods I've lived in than it is libraries in general. I spent some time writing in the Rose Reading room at the NYPL. It's so beautiful, like stepping through a warp in the time/ space continuum, no one would dare disturb the serenity and silence.
I can’t imagine being an aide with this condition - my joints dislocate just from rolling over in bed. It’s definitely getting more attention these days which is SO needed.
It was once thought of as rare but now it appears it’s probably just chronically underdiagnosed. It can really make life difficult and early diagnosis is SO important so you can get supportive care.
Second time I've heard this disease mentioned in a week. Ehlers-Danlos Syndrome. Mom had an aide we thought was perfect, but she has that plus something else and it was too much physical labor for her. I'd never heard of it before last week.
I loved libraries for their quietness. When your life is filled with chaos, sometimes silence is enough. These days, that's not as true with arguments over who will use the computer next and so on. Or maybe it's more about the neighborhoods I've lived in than it is libraries in general. I spent some time writing in the Rose Reading room at the NYPL. It's so beautiful, like stepping through a warp in the time/ space continuum, no one would dare disturb the serenity and silence.
And, as you said, the bathrooms are always clean,
I can’t imagine being an aide with this condition - my joints dislocate just from rolling over in bed. It’s definitely getting more attention these days which is SO needed.
It was once thought of as rare but now it appears it’s probably just chronically underdiagnosed. It can really make life difficult and early diagnosis is SO important so you can get supportive care.