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Gray's avatar

I have POTS, too! I've had the symptoms for years, maybe almost a decade. It wasn't until meeting a new GP focused on chronic conditions post-pandemic that I got a diagnosis, and I think a lot of specialists would possibly write me off for not having gone to them. Because it's such an under-diagnosed and under-discussed condition, it's hard to believe that I actually have it some days (until I stand up too fast, try to take a walk, go up a few flights of stairs...). Medical fatphobia also seriously complicates POTS treatment and diagnosis, as it's easy to write off most of the symptoms as "being out of shape," to the point where there's still the persistent myth among doctors that POTS is caused by "deconditioning."

It's important to note, though, that only about 30-40% of POTS patients actually experience syncope (fainting). It's clearly a severe symptom for you, which is so important to discuss! However, I don't want people reading to think that anyone needs to faint in order to have the condition. Sometimes, fainting becomes a gatekeeping symptom in the POTS community and among doctors, so I think it's important to mention.

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Reda Rountree (she/her)'s avatar

I have to tell you how fortunate I feel about finding you. You’ve helped me so much. I actually have a medical appointment in an hour and this article even helped me with that! I just wanted to say thank you, I’m grateful to you, and I look forward to reading your next essay in the series.

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