I have a CT coming up. I hate this, because I am dangerously allergic to the contrast dye. I CODED last time. Even though I say it every time, and I must assume it’s in my charts, I’ve had to YELL “NO!!!” to someone about to inject me. I just don’t know if they don’t look, don’t believe me, or what, but I’m NOT interested in dying. I’m incredibly reluctant to agree to this procedure. It absolutely can and has been done without the dye, but I’m super anxious about it.
I’ve mentioned other bullshit elsewhere and I won’t go into it here.
I’m so sorry! I’m terribly allergic to the contrast too so I feel your pain. I don’t know if they don’t believe us or they just assume “you’re in a hospital - we can manage it” but I push for MRIs wherever possible. Have you tried Iv pre-medication? That kept me from coding last time (though I still went into anaphylaxis and it was not a fun time).
I wrote a prior article on how to be a good advocate for a disabled person - but it can apply to advocating for yourself as well. It might be helpful? Sadly sometimes there’s almost nothing we can do - which is why I shared the story of Prof Patel. He and his wife tried so hard and the system utterly failed them.
I was *told* that even if I pre-medicated, I would die. This was from they all who coded me the first time. They said “never have this again, and wear a bracelet”. So I’ve never tried it even.
I shall read in the morning, when my neurons are in better order🩷 they’re tired.
Good grief - they really should follow their own advice then! I’m so sorry. Is an MRI an option? I also found that Iv pre-medication was more effective than oral (still wouldn’t want to risk it again).
I have a CT coming up. I hate this, because I am dangerously allergic to the contrast dye. I CODED last time. Even though I say it every time, and I must assume it’s in my charts, I’ve had to YELL “NO!!!” to someone about to inject me. I just don’t know if they don’t look, don’t believe me, or what, but I’m NOT interested in dying. I’m incredibly reluctant to agree to this procedure. It absolutely can and has been done without the dye, but I’m super anxious about it.
I’ve mentioned other bullshit elsewhere and I won’t go into it here.
I’m so sorry! I’m terribly allergic to the contrast too so I feel your pain. I don’t know if they don’t believe us or they just assume “you’re in a hospital - we can manage it” but I push for MRIs wherever possible. Have you tried Iv pre-medication? That kept me from coding last time (though I still went into anaphylaxis and it was not a fun time).
I wrote a prior article on how to be a good advocate for a disabled person - but it can apply to advocating for yourself as well. It might be helpful? Sadly sometimes there’s almost nothing we can do - which is why I shared the story of Prof Patel. He and his wife tried so hard and the system utterly failed them.
I was *told* that even if I pre-medicated, I would die. This was from they all who coded me the first time. They said “never have this again, and wear a bracelet”. So I’ve never tried it even.
I shall read in the morning, when my neurons are in better order🩷 they’re tired.
Good grief - they really should follow their own advice then! I’m so sorry. Is an MRI an option? I also found that Iv pre-medication was more effective than oral (still wouldn’t want to risk it again).
Here’s the article - for whenever your neurons are up for it. I’m crossing my Crossables they respect your boundaries and avoid the contrast this time! https://www.disabledginger.com/p/how-to-be-an-effective-advocate-for